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Public Health Genomics and Precision Health Knowledge Base (v9.0)
PHGKB
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Public Health Genomics Branch
PHGKB Weekly Horizon Scan
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Precision Health Database
Precision Health Database|Search|Public Health Genomics and Precision Health Knowledge Base (PHGKB)
Last data update: May 18, 2024
. (Total: 63881 Documents since 2012)
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Query Trace:
Real Stories from People Living with Hemophilia – Carrie
CDC, November 2021
Real Stories from People Living with Sickle Cell Disease: Rae Blaylark
CDC, November 2021
My Inherited Condition Has Led to a Life and Career I Love
MA Lewis, ASCO Post, October 2020
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too. I was told it didn’t run in families. Was it just chance?
S Hashmi, NY Times, October 20, 2020
“My disability has become an ability”
E Manna, Nature Medicine, August 24, 2020
Real Stories: Living with Spina Bifida
CDC, 2019
How I wish people talked about living with a BRCA mutation
E Stallings, Hello Giggles, June 26, 2019
When a Rare Mutation Causes a Rare Disease: Jacob�s Story
R Lewis, PLOS Blogs, June 20, 2019
'Out of the Blue' Diagnosis Linked to a Family History of Cancer Now Empowers Others
S Friedman, Cure, June 12, 2019
Avery Watts and family fighting for her heart
J Heim, HM Media, March, 2019
7 Things I Wish I Had Known About Being 'Rare'
K Moore, The Mighty, March 2019
Real Stories from People Living with Hemophilia
CDC, 2019
I Got A Double Mastectomy After A Genetic Test. Then I Learned The Results Were Wrong.
M Boesen, Huffington Post, February 22, 2019
It took more than a decade to explain the sudden death of my precious teenage son
K Gardner, the Guardian, February 22, 2019
Ryans Story
The FH Foundation, February 14, 2019
I had Lynch syndrome for 30 hours
E Matloff, Forbes, February 12, 2019
Emily and Carolines Story
CDC Division of Cancer Control and Prevention, 2019
Saving my family from the deadly consequences of familial hypercholesterolemia
The FH Foundation, YouTube 2019
Reflecting on a New Year
S Seim, the FH Foundation, January 2019
Our child received a devastating diagnosis before she was born. We decided to protect her
A Chang, Stat News, January 7, 2019
Mom Opens Up About Life with Daughter Who Has Rare Genetic Disorder: 'She's a Happy Girl'
C Adams, People, January 3, 2019
Why I Wish I Hadn't Done Genetic Testing While I Was Pregnant
AE Murray, PopSugar, December 26, 2018
Lynch Syndrome and Death Anxiety
G Hurst, Cure today, December 11, 2018
Reconciling a Hereditary Cancer Diagnosis
G Hurst, Cure Magazine, November 5, 2018
Let's Talk Lynch: Rachel's story
YouTube video, September 2018
Personal Stories from the New Era of Patient Focused Advocacy
NORD, October 2018
Breast cancer survivor talks about BRCA
A Salinas, Fox 7, October 15, 2018
The Doctor And The Boy In The Bubble
S Simon, NPR, October 13, 2018
The Cost of Ovarian Cancer Prevention- Seven years ago, I was diagnosed with Lynch syndrome, a hereditary cancer condition which significantly increases my chances of developing early-onset cancer.
G Hurst, Cure Magazine, September 24, 2018
She tried diet and exercise. But her high cholesterol came from her genes.
N Brown, American Heart Association, September 4, 2018
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Page last reviewed:
Feb 1, 2024
Page last updated:
May 18, 2024
Content source:
Public Health Genomics Branch in the Division of Blood Disorders and Public Health Genomics
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National Center on Birth Defects and Developmental Disabilities
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